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Population Cohort

Rakai Community Cohort Study (RCCS)

RCCSActiveUgandaEstablished 1994Cohort
25,000
Cohort size
1994
Year started
Rural
Setting
15–49 (now 15–80+)
Age group
All
Sex
Cohort
Cohort type

About this cohort

Long-running community-based open cohort initiated in 1994 in 50 communities across Rakai and neighbouring districts of south-central Uganda. ~12,000+ residents aged 15–49 at any one survey round; expanded over time to wider age ranges, with annual to biennial household censuses and HIV surveys. One of the world's premier HIV transmission, prevention and treatment-impact platforms. (Note: row 77 RHSP is the implementing organisation.)

Cohort-provided summary · derived from APCC directory fields

Research themes

Primary research themes for this cohort.

HIV/AIDS
Sexual & Reproductive Health
Population-Based

Study population

Who the cohort follows.

This cohort covers 25,000 participants in a rural setting in Uganda, spanning 15–49 (now 15–80+) (all). Detailed inclusion criteria and follow-up schedule — To be confirmed.

Timeline

Milestones in the cohort record.

1994
Cohort established
Start of data collection as recorded in the APCC directory.
Further milestones
To be confirmed Additional events pending custodian input.

Key characteristics

Core descriptive metadata.

Study design / type
Cohort
Cohort size
25,000Participants / residents
Population focus
15–49 (now 15–80+) · All
Geographic coverage
UgandaRural
Year started
1994Ongoing
Coordinates
-0.7167, 31.4Lat, Long

Institutions & governance

Lead institution(s); partners and governance to be confirmed.

Rakai Health Sciences Program (RHSP)
Johns Hopkins University
Makerere University

Partner institutions & governance arrangements — To be confirmed

Nested studies & sub-cohorts

Studies built on this cohort platform.

Nested studies / sub-cohorts — To be confirmed.

FAIR readiness

Findable, Accessible, Interoperable, Reusable assessment.

F · TBCA · TBCI · TBCR · TBC
FAIR assessment pending — to be completed with the cohort custodian against the APCC metadata standard.

Investigators

Principal investigators and ORCID identifiers.

Information pending validation.

Publications & evidence

Outputs, policy briefs and research evidence.

◆ Powered by Africahied
Publications, policy briefs and research outputs to be linked from Africahied. To be confirmed.

Data access & governance

How the data can be accessed and governed.

🔒
Access procedure
Managed access via the cohort custodian
Request
🛡
Ethics & governance
To be confirmed

Collaboration opportunities

Partnerships and capacity strengthening.

Collaboration opportunities, capacity-strengthening and partnership details. To be confirmed.

Contact

How to reach the cohort team or request access.

🏛
Lead institution
Rakai Health Sciences Program (RHSP)
Contact
To be confirmed
Metadata source: APCC cohort directoryLast reviewed: 19 June 2026Some fields are placeholders pending custodian confirmation — verify independently.