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Health & Demographic Surveillance System

Butaro Health and Demographic Surveillance System (Butaro HDSS)

Butaro HDSSActiveRwandaEstablished 2020HDSS
38,000
Cohort size
2020
Year started
Rural
Setting
All ages
Age group
All
Sex
HDSS
Cohort type

About this cohort

Open HDSS in rural Butaro, northern Rwanda, serving as the main field research platform for the University of Global Health Equity (UGHE) covering ~38,000 residents. Integrates household, demographic, mortality, morbidity and health-facility data via a unified participant ID. Hosts nested studies including a Healthy Ageing & Multimorbidity survey (>4,300 adults 40+ in Burera and Kigali) and a birth cohort of 1,200 pregnant women.

Cohort-provided summary · derived from APCC directory fields

Research themes

Primary research themes for this cohort.

Demographic surveillance
Aging & Multimorbidity
Maternal & Child Health
Health systems

Study population

Who the cohort follows.

This cohort covers 38,000 participants in a rural setting in Rwanda, spanning All ages (all). Detailed inclusion criteria and follow-up schedule — To be confirmed.

Timeline

Milestones in the cohort record.

2020
Cohort established
Start of data collection as recorded in the APCC directory.
Further milestones
To be confirmed Additional events pending custodian input.

Key characteristics

Core descriptive metadata.

Study design / type
HDSS
Cohort size
38,000Participants / residents
Population focus
All ages · All
Geographic coverage
RwandaRural
Year started
2020Ongoing
Coordinates
-1.4, 29.85Lat, Long

Institutions & governance

Lead institution(s); partners and governance to be confirmed.

University of Global Health Equity (UGHE)
Rwanda Biomedical Centre
Northwestern University
University of Birmingham

Partner institutions & governance arrangements — To be confirmed

Nested studies & sub-cohorts

Studies built on this cohort platform.

Nested studies / sub-cohorts — To be confirmed.

FAIR readiness

Findable, Accessible, Interoperable, Reusable assessment.

F · TBCA · TBCI · TBCR · TBC
FAIR assessment pending — to be completed with the cohort custodian against the APCC metadata standard.

Investigators

Principal investigators and ORCID identifiers.

Information pending validation.

Publications & evidence

Outputs, policy briefs and research evidence.

◆ Powered by Africahied
Publications, policy briefs and research outputs to be linked from Africahied. To be confirmed.

Data access & governance

How the data can be accessed and governed.

🔒
Access procedure
Managed access via the cohort custodian
Request
🛡
Ethics & governance
To be confirmed

Collaboration opportunities

Partnerships and capacity strengthening.

Collaboration opportunities, capacity-strengthening and partnership details. To be confirmed.

Contact

How to reach the cohort team or request access.

🏛
Lead institution
University of Global Health Equity (UGHE)
Contact
To be confirmed
Metadata source: APCC cohort directoryLast reviewed: 19 June 2026Some fields are placeholders pending custodian confirmation — verify independently.